I don't usually double-post, saving the Clan of Mahlou bog for the more detailed family issues and 100th Lamb for the more general topics, but there was a time when readers of this blog were following the story of NBikolina and so I am posting here the update I posted on the Clan of Mahlou.
I think when my logs got hijacked, Nikolina was still a toddler. Well, she is now in first grade! For those who have followed her from her Miracle Baby status at Stanford University Hospital through the hack date, I have exciting news.
She not only survived, but she thrived. She is a happy, pretty, bright little girl today who loves to ride therapy horses, does well in schools, handles technilogy with zest, and spins around in her wheelchair with zip. She actually can walk, but slowly, with hot pink braces.
School was a challenge medically, but the school invited my daughter-in-law to come to school all day every day in case of medical urgencies and emergencies, and that has worked. Nikolina is not overwhelmed by Mommy, because Mommy helps out all the classes yet is close by for changing ostomy bags or recognizing the need for a dash to the local hospital in Sacramento -- as y'all might recall, they were in the process of moving there when the blog went blank -- or a longer ride to Stanford.
As for all the rest of it, Nikolina leads a normal litlte girl's life: she has birthday parties and goes to birthday parties, loves her cat and big brother, visits Disneyland, plays with other kids, and anything else one would imagine as part of a child's life.
Never out of the woods but oh, so far from the beginning of the path...and so much more light shining through the trees!
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